Tuesday, December 9, 2008
Tuesday, November 18, 2008
Monday, November 17, 2008
Now I will tell what happened on Friday. Bayley had her 2nd EIS evaluation and it ended up going GREAT! I loved the speech pathologist. She was so nice and very informative. She said that Bayley does have a significant delay. They rate them in 3 different areas of communication and Bay passed all of them except expressive communication. She suggested taht we immediately begin using sign language with Bay not to take the place of verbal communication but to allow her another avenue to express herself. SHe said that it actually works to spark communication interests and that kids actually do better verbally when involved with signing. Who would have thought it. lol So I bought a sign language book Saturday and we are SLOWLY learning. Paul & Amy have a video that we are going to borrow that should help also. Right now we are working on the sign for eat, more and cup. We will introduce other signs gradually. The therapist said that as her signing skills improved that Bays frustration level would decrease because she would be able to actually tell us what she is wanting or needing. She said within 5 minutes of being there that yes she did have a couple of autistic traits but that SHE IS NOT AUTISTIC not even mild. lol She said Bayley even scored above average on one of the 3 areas of communication. It was very reassuring to have someone tell us that yes she is delayed BUT she is still doing great and there is no reason why she cant progress and eventually catch up. I was very happy with the outcome of the evaluation. It gave me reassurance that we are doing the right things and also gave us something new that we can do to attempt to help her. Overall I consider it a HUGE SUCCESS! lol
More later.
Friday, November 14, 2008
Sad heart, waiting, anxiety and crossed fingers
My Daddy went back to the doctor today. They were reviewing all of his recent chest xrays, chest ct, biopsy results from his face etc. His Cat Scan showed something that they suggested watching for 6 months and repeating the ct. The doctor has decided to go ahead and send him to pulmonology and see what they think. I like that idea better...6 months of waiting is a lil much for me.
We have our 2nd EIS evaluation this afternoon. (That is if they dont cancel again...grrrrr) Keep your fingers crossed and say a prayer that Bay will cooperate and do something besides Woof and scream BITE! lol
Monday at 10 is Bays CF testing. One minute I am completely calm and this is just precautionary and silly and the next minute my anxiety is through the roof! lol It is easier when Im at home because brian doesnt get excited about anything so he keeps things good and calm! lol They told me today that we should be able to get results from our doctor on Monday at some point which is a relief that we wont have days more of waiting. Hopefully we can put all this behind us and take some deep breaths next week! More later.
Thursday, November 13, 2008
Exciting development. Bayley is having her 2nd EIS evaluation TODAY at 4!!!! Keep your fingers crossed and say a prayer that the DIVA will cooperate! lol Unfortunately she wasnt in a lovely mood this morning so who knows what is going to happen. I am just thankful that hopefully we can get some results at some point next week maybe. All this waiting is making me a crazy person! lol I will update after the evaluation.
Wednesday, November 12, 2008
Tuesday, November 11, 2008
Friday, November 7, 2008
Late Halloween pics & update
This is gonna be short and sweet. My Daddy is going back to the doctor at 3 today to get his stitches out. Other than that he is doing good.
Friday, October 31, 2008
Bayley just had her EIS evaluation. We wont know the official results until Tuesday but the lady did tell me that Bayley was significantly delayed. She observed Bayley for about an hour and asked lots of questions. She said that what we perceived as Bayleys fits arent just temper related. She said that a lot of it comes from frustration because she cant get her point across. She said that she has to imput her evaluation adn then we would be able to get the official results on Tuesday. She said that we would probably meet with a speech person next and then they would tell us what all exactly Bay will need. I will keep you posted as we find out more.
Anyway, we are hoping Halloween looks up. I will post pictures later.
Wednesday, October 29, 2008
Big catch up
Tuesday, October 14, 2008
I dont know where to start. Lets see...Oct 14 I took Bay for her 1st Synagis shot of the year. Bay had a whopping weight of 18 lb 2 oz and her length was still 29 1/2 inches long. She was up 1 lb from 6 weeks ago. We were really wanting her to be between 18 lb 8 oz - 19 lb but Dr. Tindle said it was a gain so we will take it. The weight gain was good EXCEPT it threw her in a higher Synagis dose which meant they had to split it into two different shots - one in each leg. OUCH! Dr. Tindle checked her over good and said she thinks her cough is just allergy/viral. Her blood work looked good so no meds for Bay. We talked A LOT about Bays talking. On a daily basis Bay says Dada, Bite & Woof...and that is it. she has said other words in the past but doesnt use them on a regular basis. Dr. Tindle said she felt like it was time to get a EIS (Early Intervention Services) evaluation just to see what they say.
I called and have gotten the EIS evaluation process started. I have dreaded this for months and months but after talking to the EIS coordinator Im not as worried! Shocker I know. She said 70% of all the kids evaluated dont qualify for EIS Services/therapy. You have to have a 25% deficit in one or more areas in order to qualify. Long story short...after doing the questionnaire she qualified for evaluation based on slow speech and she has several markers for autism. I am trying not to worry and hoping that she will be in the 70% that end up being just fine. It will be atleast another week or two before they do the evaluation. Say a lil prayer for Bay...although my gut says she is gonna be fine prayer is always good!
We have been getting ready for Bay to swap classes in daycare. She is still in the 9-12 month class now and needs to move up. I went today and met the teachers. They were all nice. We are just a little shocked because the next class they sleep in cots and they have a NO PACI rule...well that is getting changed because Bayley is getting her paci during naptime...rules were made to be broken and no body is taking my girls paci at this point...maybe later but not now! This will be a big change for Bay (no morning nap, no morning snack, only 1 cup a day) I am really dreading the adjustment period. The class she has been in has been wonderful to basically feed her all day everyday but this next class they just dont do that so I am a lil concerned that it may hurt her weight gain...keep your fingers crossed!
PG just had homecoming last week. My friend Cindi came over and we took Bay to her first football team Brian wouldnt go :( We had a great time. Cindi (Eye Momma to Bay) spoiled Bay rotten letting her climb all over her and get away with murder! lol Bay LOVED the Band and clapped along with them. it was so cute.
Syd is doing pretty good these days. Teenage years are filled with constant ups and downs but somehow she always ends up on top. We are so lucky with her she is such a good girl. She has just done FABULOUS in school the last few weeks!!! Forgive me of my proud momma moment and check out Syds 1st 9 week report card!
Report Card Grades
Grading Period:
9-12) 1ST NINE WEEKS Dates: 8/13/2008 - 10/16/2008
98 GEOMETRY ENGLISH, MARILYN
94 HEALTH PNAZEK, KURT C. A PLEASURE TO HAVE IN MY CLASS GREAT STUDENT
90 ENG 10, HON PRE AP SHALABY, YASMENE F. A PLEASURE TO HAVE IN MY CLASS
87 US HISTORY HON PAP ERRECA, MICHAEL J.
91 BIOLOGY AP MCLEOD, SHAWN W.
92 CHEMISTY HON PAP MCLEOD, ANGELA M.
100 ATH G 9-12 FALL WILLIAMS, ALEXIS
WOOO HOO!!!!! Im telling you that AP Biology 91 is an absolute miracle considering a few weeks ago she had a 50 in his class!!!! Go Syd!
Well that is about it for updates....more later.
Friday, October 10, 2008
PS - My friend Cindi is having some additional tests done today. Please keep her in your prayers also!
Thursday, October 9, 2008
Mary Update x 4
UPDATE: I just talked to Becky and she just left UAB (3:30) and MARY IS STILL WAITING!!! Bless her heart! They have the liver. They are splitting it now. Hopefully surgery will happen around 4. PRAY PRAY PRAY.
UPDATE!!!!: Kim just called me at 2:15 and said Mary is still in the surgery holding. They were supposed to have the liver about 1:30 and Kim had just seen Mary and she is still waiting. Kim said Mary had held up really good but they have given her some "loopy" medicine and are ready to go. Kim said it looked like it would be around 2:45-3:00. UGH what a horrible wait for all of them. PRAY PRAY PRAY
Kim called Katie about 1;15 and said they had just took Mary back. Katie said they are expecting about a 6-8 hour surgery so it is going to be a LONGGG day. PRAY PRAY PRAY!!!
Update on Mary
Wednesday, October 8, 2008
WOOO HOOOO for Mary
Thursday, October 2, 2008
15'ers and RSV
Bayley Lauren 15 months ...Sydney Meghan 15 years!
Everyone should start their day with a lil Gerber baby Cheese puff Breakfast!
Things have been sickly around our house lately. I have had a crazy cold /laryngitis for the last week. Two doctors appointments and many many dollars later I am better. Bayley was up coughing for awhile last night. I am hoping she doesnt get this mess. Brian has it now but we are hoping that since he started antibiotics early it wont be that bad. Bayley coughed more than we would like last night and Ms. Anita from daycare said Bay hasnt eaten good for them in two days. She was even refusing snacks which is odd for Bay.
The other night we were eating Chicken Speghetti bake (YUM) and Sydney decided to help me get a picture of Bayley's new teeth. As you can see we had several failed attempts.
Yes I know this next picture is blurry but if you look close at the bottom middle you can see her two pretty teeth. If you look REAL close you can see the one that is almost ready to come in.
Saturday me and the girls went and met Devin, Terry (his dad) and Duran (his brother) for lunch at Logans. It was good. Bayley was too cute and put on quite the show for them in the parking lot. Devin & Syd let her walk around and she sported her cute hat Syd got her. She is a mess.Syd has been studying like a crazy person these days. She had major tests this week so lets hope they all went well. Honor Society this year is doing a lot more which is fun for her but also time consuming. She has to go help clean up at he school Saturday morning from 8-12... no sleep for her. They are also doing Teacher friends and some kind of can good trick or treating. O - also Sydney drove on the interstate for the first time Saturday. She did pretty good except I found out the hard way she is afraid of 18 wheelers...I told Brian that is his project to work on!
The only other news I have is yesterday started RSV season! YUK YUK YUK
I got my phone call from Dr. Tindle's office advising us to begin using antibacterial again RELIGIOUSLY! We were also caustioned to limit her exposure which is hard considering this year she is in daycare...so how much do you isolate her considering she is already exposed to everything in the world in that place. I am very torn over it and will probably just wait and talk to Dr. Tindle more at our next visit on October 14th. Also we got our schedule. O the Joys of Synagis. So once a month from now until April Bayley will get her Synagis shot to the tune of $1500.00 per shot billed to the lovely BCBS. I will gladly pay my $180.00 in copays instead of the $9000.00 bill that they pay. So far we will only scheduled to do the short course which is 6 months but that could change to add 1 additional month depending on her weight, overall health, and the RSV season itself. So if you see Bayley walking around church or daycare with a Purel bottle hanging around her neck dont be shocked.
Wednesday, September 24, 2008
Ok on Sydney news, She is just as silly as ever!
Syd's knee is still hurt. She is having to go to physical therapy on her knee twice a week. She is has a tight hamstring. I cant tell that PT is helping that drastically. Hopefully she will get some relief or else soccer is going to be miserable.
School is HARD! The new AB schedule is really kicking everyone's booty. Having to juggle 8 classes instead of 4 has definitely proven to be a challenge. She is doing really well in a few classes, keeping her head above water in a couple of others and DROWNING in AP Biology. She has a 99.54 in Geometry (YAY SYD!), a 89.99 in Pre AP Chemistry, a 86 in PreAP English, a 82 in Pre AP History, and drum roll a 50 in AP Biology. Yup my honors student is STRUGGLING! She has studied like a mad person for this class and she has a 50. In all honesty, I have only found a hand full of students who actually passed the 1st test. They dont get points on HW so they have no way to pull their grade up except for tests so say a prayer that those test scores go back up. Syd is really working on study habits but if anyone has any helpful hints feel free to leave them.
Driving for Syd has been an adventure. So she has only scared the life out of me a few times. I need to get an emergency brake for the backseat so when Im sitting back there with Bay I can save us. Lets hope time improves her skills. lol
Anyway, that is all I can think of for now. I will try to not wait as long before I post next.
Friday, September 5, 2008
LONG post but IMPORTANT QUESTION AT THE BOTTOM!!!
HA Just kidding. She PASSED on the first try!!!! WOOO HOOO! She was THRILLED! I was so proud of her and terrified for myself! We came straight to PG and she drove for the first time. I have to say it was every bit as bad as I had feared. But she did get a little better the longer she drove. Brian took her out last night and let her drive and he didnt think she was that bad. I guess she got her terribleness out on me. In other news, We temporarily have custody of Sunkist Steel who is the puppy that Devin & Syd rescued several months back. She was living in pitiful conditions when they got her and Devin has kept her at his house and as you can see she has grown a ton! She is approximately 7 months old and weighs somewhere around 55-60 lbs and GROWING! The vet said she is a golden retriever, lab, great pyrenees mix. Sunkist is such a sweetheart & Bayley LOVES her. She is so gentle with her. Sydney is loving having her big baby at her house...Brian is doing better than I thought with it. lol
Bay turned 15 months Wednesday. Can you believe I have a 15 year old and a 15 month old?!?!?! Scarey!!!