Sydney Meghan

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Little Miss Bayley

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Friday, October 31, 2008

My Daddy made it through his surgery good. It was LONG but they feel confident they got it all.

Bayley just had her EIS evaluation. We wont know the official results until Tuesday but the lady did tell me that Bayley was significantly delayed. She observed Bayley for about an hour and asked lots of questions. She said that what we perceived as Bayleys fits arent just temper related. She said that a lot of it comes from frustration because she cant get her point across. She said that she has to imput her evaluation adn then we would be able to get the official results on Tuesday. She said that we would probably meet with a speech person next and then they would tell us what all exactly Bay will need. I will keep you posted as we find out more.

Anyway, we are hoping Halloween looks up. I will post pictures later.

Wednesday, October 29, 2008

Big catch up

Ok here are the highlights of what has been going on with us.
Oct 21st I took Bayley to daycare and got to meet all of the teachers that will be in her big girl class. I liked them all. I really LOVED one of them... she is technically in the class above Bayley's but they kinda work together. She is a foster parent and last year had 3 preemies at once (a 23 weeker, 27 weeker and a 29 weeker) so I felt GREAT about her being around. October 22 was supposed to be Bayley's first full day in big girl class (12-18 months) but we both ended up sick. I stayed home from work and went to the doctor and while I was there the daycare called and said Bays cough had gotten worse. So after I left the doctor with 2 shots and 4 Rx, I went and got her and we went to see Dr. McDaniel. Bay weighed 18 lb 3 oz and she had early croup & a sinus infection. She got 2 shots and 2 Rx. In total we spent $138.00 in prescriptions and $60.00 in copays....UGHHHHH! I stayed home with Bay Wednesday & Thursday. Poor Syd was sick too with a cough that wouldnt go away so luckily I had enough antibiotics around to go ahead and treat her too.
Syd took this pic of Bay & Brian. too cute.
Oct 25th We went and shopped some for halloween costumes and decided we were better off just making something ourself. Gail has helped us out with Syd's Pebbles costume. I think it will end up cute! We ended up just watching movies and goofing off all night.

Oct 27th was Bayley's first official full day in big girl class. She did great!!! Believe it or not she slept 2 1/2 hours in a cot WITH HER PACI! :) She played with the big kids like she has always been in that class....and she ate a ton! I have to say that I predict our next doctors visit with Bay she will have a BIG weight GAIN!!! Im telling you she is heavy now. Im scared to put her on our scales at home because I dont wanna be disappointed but Im telling you she even has a lil belly. She has been on steroids for a week and it is like she has had the munchies! She is cracking us up!

Oct 28 Bay had another good day at daycare. She slept 3 hours and ate good again! woohoooo.... After work we headed to Gails to check out progress on the pebbles costume and then we went to the thrift store to get a few things for Syds outfit. After that we ended up meeting Cindi for dinner. Bay was so excited she loves her "EyeMomma". lol We had a good time and then we ran by Cindis to pick up a few things she had gotten together for Syds outfit. She ended up finding a neighbor with the perfect thing for Syd to borrow...Gotta wait til I post the pictures to find out what it was. Anyway, we ran to Target & then home just in time to get Bay to bed.

School is going good for Syd. She went to an AP Biology study session yesterday. She said it was Super Boring but she got extra points for going so believe me Im glad she went! lol

We have had a scare going on with my Daddy this past week. I was scared to post anything because some of our family didnt know what was going on nad there was no need to get everyone excited until we found out more. Basically my Daddy had several skin biopsies done a week or so ago. They came back that he has a squamous cell cancer on his left cheek and the place on his right jaw area came back that it could have possibly been a metastisis from a different cancer. After comparing a previous biopsy from that spot, going to see Dr. Goldfard, and having a head and neck CT they have decided that they think this is another squamous cell. Daddy is going to have surgery on Friday at St. Vincents so we will know more then. This certainly appears to be a better diagnosis than they first feared and for that we are very thankful. Please keep my Daddy in your prayers on Friday.

Oct 29. Today was good. After church tonight we had Trunk or Treat. Didnt my "COW GIRLS" end up cute!!! Bay was the cutest cow ever and Syd decided last night that she wanted to go as a cowgirl to go along with Bay being a cow. Cindi had a neighbor that had the cow print cowboy hat & the black boots! They were perfect!!!


Tuesday, October 14, 2008

You gotta love her smile!

I dont know where to start. Lets see...Oct 14 I took Bay for her 1st Synagis shot of the year. Bay had a whopping weight of 18 lb 2 oz and her length was still 29 1/2 inches long. She was up 1 lb from 6 weeks ago. We were really wanting her to be between 18 lb 8 oz - 19 lb but Dr. Tindle said it was a gain so we will take it. The weight gain was good EXCEPT it threw her in a higher Synagis dose which meant they had to split it into two different shots - one in each leg. OUCH! Dr. Tindle checked her over good and said she thinks her cough is just allergy/viral. Her blood work looked good so no meds for Bay. We talked A LOT about Bays talking. On a daily basis Bay says Dada, Bite & Woof...and that is it. she has said other words in the past but doesnt use them on a regular basis. Dr. Tindle said she felt like it was time to get a EIS (Early Intervention Services) evaluation just to see what they say.


I called and have gotten the EIS evaluation process started. I have dreaded this for months and months but after talking to the EIS coordinator Im not as worried! Shocker I know. She said 70% of all the kids evaluated dont qualify for EIS Services/therapy. You have to have a 25% deficit in one or more areas in order to qualify. Long story short...after doing the questionnaire she qualified for evaluation based on slow speech and she has several markers for autism. I am trying not to worry and hoping that she will be in the 70% that end up being just fine. It will be atleast another week or two before they do the evaluation. Say a lil prayer for Bay...although my gut says she is gonna be fine prayer is always good!

We have been getting ready for Bay to swap classes in daycare. She is still in the 9-12 month class now and needs to move up. I went today and met the teachers. They were all nice. We are just a little shocked because the next class they sleep in cots and they have a NO PACI rule...well that is getting changed because Bayley is getting her paci during naptime...rules were made to be broken and no body is taking my girls paci at this point...maybe later but not now! This will be a big change for Bay (no morning nap, no morning snack, only 1 cup a day) I am really dreading the adjustment period. The class she has been in has been wonderful to basically feed her all day everyday but this next class they just dont do that so I am a lil concerned that it may hurt her weight gain...keep your fingers crossed!

PG just had homecoming last week. My friend Cindi came over and we took Bay to her first football team Brian wouldnt go :( We had a great time. Cindi (Eye Momma to Bay) spoiled Bay rotten letting her climb all over her and get away with murder! lol Bay LOVED the Band and clapped along with them. it was so cute.


Syd is doing pretty good these days. Teenage years are filled with constant ups and downs but somehow she always ends up on top. We are so lucky with her she is such a good girl. She has just done FABULOUS in school the last few weeks!!! Forgive me of my proud momma moment and check out Syds 1st 9 week report card!

Report Card Grades
Grading Period:
9-12) 1ST NINE WEEKS Dates: 8/13/2008 - 10/16/2008
98 GEOMETRY ENGLISH, MARILYN
94 HEALTH PNAZEK, KURT C. A PLEASURE TO HAVE IN MY CLASS GREAT STUDENT
90 ENG 10, HON PRE AP SHALABY, YASMENE F. A PLEASURE TO HAVE IN MY CLASS
87 US HISTORY HON PAP ERRECA, MICHAEL J.
91 BIOLOGY AP MCLEOD, SHAWN W.
92 CHEMISTY HON PAP MCLEOD, ANGELA M.
100 ATH G 9-12 FALL WILLIAMS, ALEXIS

WOOO HOO!!!!! Im telling you that AP Biology 91 is an absolute miracle considering a few weeks ago she had a 50 in his class!!!! Go Syd!

Well that is about it for updates....more later.

Friday, October 10, 2008

I will just say that things could not have gone better for Mary and Kakeiria! Go read Susans last few blogs for a complete update! God is good! Please continue to pray for both of them!

PS - My friend Cindi is having some additional tests done today. Please keep her in your prayers also!

Thursday, October 9, 2008

Mary Update x 4

UPDATE # 4: I just got a text from Kim (4:42). They took Mary into surgery about 30 minutes ago! Please keep Mary in your prayers and also the lil 2 year old baby that is getting the other portion of the liver. PRAY PRAY PRAY!

UPDATE: I just talked to Becky and she just left UAB (3:30) and MARY IS STILL WAITING!!! Bless her heart! They have the liver. They are splitting it now. Hopefully surgery will happen around 4. PRAY PRAY PRAY.

UPDATE!!!!: Kim just called me at 2:15 and said Mary is still in the surgery holding. They were supposed to have the liver about 1:30 and Kim had just seen Mary and she is still waiting. Kim said Mary had held up really good but they have given her some "loopy" medicine and are ready to go. Kim said it looked like it would be around 2:45-3:00. UGH what a horrible wait for all of them. PRAY PRAY PRAY

Kim called Katie about 1;15 and said they had just took Mary back. Katie said they are expecting about a 6-8 hour surgery so it is going to be a LONGGG day. PRAY PRAY PRAY!!!

Update on Mary

Just got a text from Alex. Marys surgery has been put off until 2 today. The liver isnt here yet and then they will have to split it which will take about an hour so they are planning to take Mary in for the surgery at 2. PRAY PRAY PRAY!!!!

Wednesday, October 8, 2008

WOOO HOOOO for Mary

Mary Courington just called me at 2:10. She got a liver!!!! She said they are splitting a liver between her and a pediatric patient. She goes in today at 4pm and they will do the surgery tomorrow morning. PLEASE START PRAYING NOW AND DONT STOP!!! Pray that this will be a true match and that the surgery will be sucessful and that Mary will be able to finally be out of pain and misery. I love you Mary and will be praying for you constantly!

Thursday, October 2, 2008

15'ers and RSV

My Babies.... the last day they are both 15.
Bayley Lauren 15 months ...Sydney Meghan 15 years!

Everyone should start their day with a lil Gerber baby Cheese puff Breakfast!
Things have been sickly around our house lately. I have had a crazy cold /laryngitis for the last week. Two doctors appointments and many many dollars later I am better. Bayley was up coughing for awhile last night. I am hoping she doesnt get this mess. Brian has it now but we are hoping that since he started antibiotics early it wont be that bad. Bayley coughed more than we would like last night and Ms. Anita from daycare said Bay hasnt eaten good for them in two days. She was even refusing snacks which is odd for Bay.

The other night we were eating Chicken Speghetti bake (YUM) and Sydney decided to help me get a picture of Bayley's new teeth. As you can see we had several failed attempts.

Yes I know this next picture is blurry but if you look close at the bottom middle you can see her two pretty teeth. If you look REAL close you can see the one that is almost ready to come in.

Saturday me and the girls went and met Devin, Terry (his dad) and Duran (his brother) for lunch at Logans. It was good. Bayley was too cute and put on quite the show for them in the parking lot. Devin & Syd let her walk around and she sported her cute hat Syd got her. She is a mess.

Syd has been studying like a crazy person these days. She had major tests this week so lets hope they all went well. Honor Society this year is doing a lot more which is fun for her but also time consuming. She has to go help clean up at he school Saturday morning from 8-12... no sleep for her. They are also doing Teacher friends and some kind of can good trick or treating. O - also Sydney drove on the interstate for the first time Saturday. She did pretty good except I found out the hard way she is afraid of 18 wheelers...I told Brian that is his project to work on!

The only other news I have is yesterday started RSV season! YUK YUK YUK
I got my phone call from Dr. Tindle's office advising us to begin using antibacterial again RELIGIOUSLY! We were also caustioned to limit her exposure which is hard considering this year she is in daycare...so how much do you isolate her considering she is already exposed to everything in the world in that place. I am very torn over it and will probably just wait and talk to Dr. Tindle more at our next visit on October 14th. Also we got our schedule. O the Joys of Synagis. So once a month from now until April Bayley will get her Synagis shot to the tune of $1500.00 per shot billed to the lovely BCBS. I will gladly pay my $180.00 in copays instead of the $9000.00 bill that they pay. So far we will only scheduled to do the short course which is 6 months but that could change to add 1 additional month depending on her weight, overall health, and the RSV season itself. So if you see Bayley walking around church or daycare with a Purel bottle hanging around her neck dont be shocked.