NEGATIVE. We found out this afternoon that Bayley's Cystic Fibrosis test was negative!! Thank you all so much for your concern and prayers.

We didnt get results on Bayley's CF test today. They close in 15 minutes and Dr. Tindle's office still hasnt heard so it will be tomorrow. Gotta love waiting. I actually havent been too freaked today. I just think things are going to be fine but I sure will be glad when we know it for sure.

Now I will tell what happened on Friday. Bayley had her 2nd EIS evaluation and it ended up going GREAT! I loved the speech pathologist. She was so nice and very informative. She said that Bayley does have a significant delay. They rate them in 3 different areas of communication and Bay passed all of them except expressive communication. She suggested taht we immediately begin using sign language with Bay not to take the place of verbal communication but to allow her another avenue to express herself. SHe said that it actually works to spark communication interests and that kids actually do better verbally when involved with signing. Who would have thought it. lol So I bought a sign language book Saturday and we are SLOWLY learning. Paul & Amy have a video that we are going to borrow that should help also. Right now we are working on the sign for eat, more and cup. We will introduce other signs gradually. The therapist said that as her signing skills improved that Bays frustration level would decrease because she would be able to actually tell us what she is wanting or needing. She said within 5 minutes of being there that yes she did have a couple of autistic traits but that SHE IS NOT AUTISTIC not even mild. lol She said Bayley even scored above average on one of the 3 areas of communication. It was very reassuring to have someone tell us that yes she is delayed BUT she is still doing great and there is no reason why she cant progress and eventually catch up. I was very happy with the outcome of the evaluation. It gave me reassurance that we are doing the right things and also gave us something new that we can do to attempt to help her. Overall I consider it a HUGE SUCCESS! lol



More later.

Sad heart, waiting, anxiety and crossed fingers

First I have to say my heart is broken for Josh, Katie & Hannah and the loss of their very loved unborn baby. We know the pain that they are experiencing and wish so much that there was something we could do. We love all of you and you are in our prayers.

My Daddy went back to the doctor today. They were reviewing all of his recent chest xrays, chest ct, biopsy results from his face etc. His Cat Scan showed something that they suggested watching for 6 months and repeating the ct. The doctor has decided to go ahead and send him to pulmonology and see what they think. I like that idea better...6 months of waiting is a lil much for me.

We have our 2nd EIS evaluation this afternoon. (That is if they dont cancel again...grrrrr) Keep your fingers crossed and say a prayer that Bay will cooperate and do something besides Woof and scream BITE! lol

Monday at 10 is Bays CF testing. One minute I am completely calm and this is just precautionary and silly and the next minute my anxiety is through the roof! lol It is easier when Im at home because brian doesnt get excited about anything so he keeps things good and calm! lol They told me today that we should be able to get results from our doctor on Monday at some point which is a relief that we wont have days more of waiting. Hopefully we can put all this behind us and take some deep breaths next week! More later.

UPDATE: Nevermind. She cancelled! UGH!

Exciting development. Bayley is having her 2nd EIS evaluation TODAY at 4!!!! Keep your fingers crossed and say a prayer that the DIVA will cooperate! lol Unfortunately she wasnt in a lovely mood this morning so who knows what is going to happen. I am just thankful that hopefully we can get some results at some point next week maybe. All this waiting is making me a crazy person! lol I will update after the evaluation.

I just heard from Dr. Tindle's office. They scheduled Bayley's Cystic Fibrosis test for Monday November 17th at 10am. Ugh its gonna be a long 5 days but o well Im sticking with my gut and I really think she is gonna be fine.

Bayleys new weight gain program....cheese straight from the can. lolQuick update. Things went from bad to worse the last few days but hopefully they are looking up. Sunday Brian and Bay stayed home with pink eye. Brian had it much worse than Bay. They are better now. Yesterday me and Syd had a horrible stomach virus. Brian had a touch of it but he was way better than us thank goodness and was able to take care of Bay. It was NOT a good day!!! UGH. We are way better today but still weak and kinda blah. I took Bay to the doctor today for Synagis. She got a ugh report. She weighed 18 lb 7 oz. EHHH Dr. Tindle said it was time to go ahead with the failure to thrive workup because she is so far from where she needs to be. So today Bay got her 2 Synagis shots and then we went to the lab and got her hand stuck for her thyroid testing. Bay has had better days bless her heart. They are scheduling the CF test at Childrens and will call me with when the appointment will be. My gut says she is fine and just always gonna be little but I will be glad when the tests are over and I can relax.

Late Halloween pics & update

Halloween Day! Pebbles & the Woofing Cow

Trunk or Treat...Our COW Girls!

Lets see...

This is gonna be short and sweet. My Daddy is going back to the doctor at 3 today to get his stitches out. Other than that he is doing good.

I talked to EIS again. I apparently got false information from the 1st lady regarding how the process works. I called Tuesday to get the results and was told that they didnt give out test results from the 1st test because it alone is meaningless. We are on the waiting list for the speech pathologist to call us to schedule for the next evaluation. I am supposed to call them back Wednesday if I still havent heard from her. After we get that evaluation they will mesh the 2 scores together and that is the result that matters. So no news yet.

Syd is doing good. Teen years are hard but she is hanging in there. She has been hanging out with some really good friends and having a great time!

Im heading to Christmas Village today with my friend Christy and Im super excited. I havent been since Sydney was little. Tomorrow is Addi's pageant and we cant wait to see her all dolled up! I know she will do great! More later.