Friday, October 31, 2008
Bayley just had her EIS evaluation. We wont know the official results until Tuesday but the lady did tell me that Bayley was significantly delayed. She observed Bayley for about an hour and asked lots of questions. She said that what we perceived as Bayleys fits arent just temper related. She said that a lot of it comes from frustration because she cant get her point across. She said that she has to imput her evaluation adn then we would be able to get the official results on Tuesday. She said that we would probably meet with a speech person next and then they would tell us what all exactly Bay will need. I will keep you posted as we find out more.
Anyway, we are hoping Halloween looks up. I will post pictures later.
Wednesday, October 29, 2008
Big catch up
Tuesday, October 14, 2008
I dont know where to start. Lets see...Oct 14 I took Bay for her 1st Synagis shot of the year. Bay had a whopping weight of 18 lb 2 oz and her length was still 29 1/2 inches long. She was up 1 lb from 6 weeks ago. We were really wanting her to be between 18 lb 8 oz - 19 lb but Dr. Tindle said it was a gain so we will take it. The weight gain was good EXCEPT it threw her in a higher Synagis dose which meant they had to split it into two different shots - one in each leg. OUCH! Dr. Tindle checked her over good and said she thinks her cough is just allergy/viral. Her blood work looked good so no meds for Bay. We talked A LOT about Bays talking. On a daily basis Bay says Dada, Bite & Woof...and that is it. she has said other words in the past but doesnt use them on a regular basis. Dr. Tindle said she felt like it was time to get a EIS (Early Intervention Services) evaluation just to see what they say.
I called and have gotten the EIS evaluation process started. I have dreaded this for months and months but after talking to the EIS coordinator Im not as worried! Shocker I know. She said 70% of all the kids evaluated dont qualify for EIS Services/therapy. You have to have a 25% deficit in one or more areas in order to qualify. Long story short...after doing the questionnaire she qualified for evaluation based on slow speech and she has several markers for autism. I am trying not to worry and hoping that she will be in the 70% that end up being just fine. It will be atleast another week or two before they do the evaluation. Say a lil prayer for Bay...although my gut says she is gonna be fine prayer is always good!
We have been getting ready for Bay to swap classes in daycare. She is still in the 9-12 month class now and needs to move up. I went today and met the teachers. They were all nice. We are just a little shocked because the next class they sleep in cots and they have a NO PACI rule...well that is getting changed because Bayley is getting her paci during naptime...rules were made to be broken and no body is taking my girls paci at this point...maybe later but not now! This will be a big change for Bay (no morning nap, no morning snack, only 1 cup a day) I am really dreading the adjustment period. The class she has been in has been wonderful to basically feed her all day everyday but this next class they just dont do that so I am a lil concerned that it may hurt her weight gain...keep your fingers crossed!
PG just had homecoming last week. My friend Cindi came over and we took Bay to her first football team Brian wouldnt go :( We had a great time. Cindi (Eye Momma to Bay) spoiled Bay rotten letting her climb all over her and get away with murder! lol Bay LOVED the Band and clapped along with them. it was so cute.
Syd is doing pretty good these days. Teenage years are filled with constant ups and downs but somehow she always ends up on top. We are so lucky with her she is such a good girl. She has just done FABULOUS in school the last few weeks!!! Forgive me of my proud momma moment and check out Syds 1st 9 week report card!
Report Card Grades
Grading Period:
9-12) 1ST NINE WEEKS Dates: 8/13/2008 - 10/16/2008
98 GEOMETRY ENGLISH, MARILYN
94 HEALTH PNAZEK, KURT C. A PLEASURE TO HAVE IN MY CLASS GREAT STUDENT
90 ENG 10, HON PRE AP SHALABY, YASMENE F. A PLEASURE TO HAVE IN MY CLASS
87 US HISTORY HON PAP ERRECA, MICHAEL J.
91 BIOLOGY AP MCLEOD, SHAWN W.
92 CHEMISTY HON PAP MCLEOD, ANGELA M.
100 ATH G 9-12 FALL WILLIAMS, ALEXIS
WOOO HOO!!!!! Im telling you that AP Biology 91 is an absolute miracle considering a few weeks ago she had a 50 in his class!!!! Go Syd!
Well that is about it for updates....more later.
Friday, October 10, 2008
PS - My friend Cindi is having some additional tests done today. Please keep her in your prayers also!
Thursday, October 9, 2008
Mary Update x 4
UPDATE: I just talked to Becky and she just left UAB (3:30) and MARY IS STILL WAITING!!! Bless her heart! They have the liver. They are splitting it now. Hopefully surgery will happen around 4. PRAY PRAY PRAY.
UPDATE!!!!: Kim just called me at 2:15 and said Mary is still in the surgery holding. They were supposed to have the liver about 1:30 and Kim had just seen Mary and she is still waiting. Kim said Mary had held up really good but they have given her some "loopy" medicine and are ready to go. Kim said it looked like it would be around 2:45-3:00. UGH what a horrible wait for all of them. PRAY PRAY PRAY
Kim called Katie about 1;15 and said they had just took Mary back. Katie said they are expecting about a 6-8 hour surgery so it is going to be a LONGGG day. PRAY PRAY PRAY!!!
Update on Mary
Wednesday, October 8, 2008
WOOO HOOOO for Mary
Thursday, October 2, 2008
15'ers and RSV
Bayley Lauren 15 months ...Sydney Meghan 15 years!
Everyone should start their day with a lil Gerber baby Cheese puff Breakfast!
Things have been sickly around our house lately. I have had a crazy cold /laryngitis for the last week. Two doctors appointments and many many dollars later I am better. Bayley was up coughing for awhile last night. I am hoping she doesnt get this mess. Brian has it now but we are hoping that since he started antibiotics early it wont be that bad. Bayley coughed more than we would like last night and Ms. Anita from daycare said Bay hasnt eaten good for them in two days. She was even refusing snacks which is odd for Bay.
The other night we were eating Chicken Speghetti bake (YUM) and Sydney decided to help me get a picture of Bayley's new teeth. As you can see we had several failed attempts.
Yes I know this next picture is blurry but if you look close at the bottom middle you can see her two pretty teeth. If you look REAL close you can see the one that is almost ready to come in.
Saturday me and the girls went and met Devin, Terry (his dad) and Duran (his brother) for lunch at Logans. It was good. Bayley was too cute and put on quite the show for them in the parking lot. Devin & Syd let her walk around and she sported her cute hat Syd got her. She is a mess.Syd has been studying like a crazy person these days. She had major tests this week so lets hope they all went well. Honor Society this year is doing a lot more which is fun for her but also time consuming. She has to go help clean up at he school Saturday morning from 8-12... no sleep for her. They are also doing Teacher friends and some kind of can good trick or treating. O - also Sydney drove on the interstate for the first time Saturday. She did pretty good except I found out the hard way she is afraid of 18 wheelers...I told Brian that is his project to work on!
The only other news I have is yesterday started RSV season! YUK YUK YUK
I got my phone call from Dr. Tindle's office advising us to begin using antibacterial again RELIGIOUSLY! We were also caustioned to limit her exposure which is hard considering this year she is in daycare...so how much do you isolate her considering she is already exposed to everything in the world in that place. I am very torn over it and will probably just wait and talk to Dr. Tindle more at our next visit on October 14th. Also we got our schedule. O the Joys of Synagis. So once a month from now until April Bayley will get her Synagis shot to the tune of $1500.00 per shot billed to the lovely BCBS. I will gladly pay my $180.00 in copays instead of the $9000.00 bill that they pay. So far we will only scheduled to do the short course which is 6 months but that could change to add 1 additional month depending on her weight, overall health, and the RSV season itself. So if you see Bayley walking around church or daycare with a Purel bottle hanging around her neck dont be shocked.